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workshop:2016:questions [2016/03/11 16:23] 65.114.233.215 [Questions/comments from Friday] |
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??? 15. Where can researchers find publicly available twin data? | ??? 15. Where can researchers find publicly available twin data? | ||
- | !!! One place a researcher can begin is the repository developed and managed by the Inter-university Consortium for | + | !!! One place a researcher can begin searching for publicly available data is the repository developed and managed by the Inter-university Consortium for Political and Social Research (ICPSR). |
- | Political and Social Research (ICPSR). | + | |
As an aside, another publicly available resource towards developing harmonized measures of biomedical phenotypes is the PhenX toolbox (https:// | As an aside, another publicly available resource towards developing harmonized measures of biomedical phenotypes is the PhenX toolbox (https:// | ||
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+ | MCK: Great question! Nick, Dorret, John?? Want to weight in? | ||
+ | Sadly (I think), twin research has not kept up with whole-genome research, where sharing of data is not only the norm, but also mandatory (for NIH funding at least). Would be scientifically useful if the same were true of twin research! | ||
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